Polio Place

A service of Post-Polio Health International

feelings

Childcare

Hints for raising children by mothers who had polio

One: I had polio at 23 and was married at 25. I had one daughter and two sons. I wore a white cotton support garment with shoulder straps and laces that expanded with girth. I also wore a right leg brace. Now, I wear braces on both legs, because with time my left (good) leg wore out.

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Communication

Communication is a two-way street. Participants in any relationship must have a mutual respect for the values, experiences, and skills that each brings to the encounter. Everyone is responsible for his/her own feelings, and experts recommend that feelings be expressed in the first person. Acknowledge them but do not place responsibility for them on someone else. For example, saying, “When such and such happens, I feel...” is preferable to saying, “You make me feel ….”

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Prescription for Pain

Sunny Roller, MA, Michigan

New pain, muscle weakness and general fatigue are common complaints of post-polio individuals who fought polio once and won, but are now reluctantly having to return to rehabilitation after a 30-40 year reprieve.

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Fatigue

Jane Dummer, Maryland

I am qualified to speak about fatigue because I fade right after lunch. When I agreed to speak, I realized very quickly I was going to discuss something which is global, yet something I really cannot define for you.

So what am I going to say? Fatigue is a normal part of living. Perhaps I can say something about what I have experienced that would help people who do not yet know they have polio-related fatigue to see how it may be different from the fatigue that anyone who is alive has.

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